This is such a pathetic story of a young boy called Ari Wibowo who sheds his skin like a snake every 41 days and must constantly
smear his body with moisturiser to stop it hardening and seizing up.
The Indonesian teenager has a rare skin condition
that doctors in Indonesia
have been unable or unwilling to treat and which has left him with an
extraordinary appearance.
He suffers from Erythroderma, an inflammatory skin
disease also known as ‘red man syndrome’, that causes the skin over almost the
entire body to become scaly and flake off.
Ari has shed his skin every 41 days since he was born 16 years ago. He
must soak his body in water every hour night and day and smear himself with
lotion every three hours to prevent drying out.
Photographer Nurcholis Anhari Lubis, 35, has
documented the little boy’s condition as part of an essay project and describes
the boy’s skin condition as ‘scaly like a snake about to shed his skin’.
‘It’s really sad because he was not born normally
and has scaly skin all over his body, similar to being severely burnt, from the
sole of his feet up to his head,’ Mr Lubis told Daily Mail Australia.
‘If the boy doesn’t moisturise or soak his skin in
water, his body would shrivel and harden up like a sculpture and he won’t be
able to move,’ Mr Lubis said.
‘If he leaves it unattended for too long, he won’t
be able to speak because the wrinkles inside his mouth would go hard and it
would dry out all his blood in his body.’
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